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The First International Conference on Hyperphagia
Best Idea Grant

BIG qualification and review parameters

  • One of the Principal Investigator’s must have attended The First International Conference on Hyperphagia in Baltimore on June 4th and 5th and participated in the roundtable discussions.
  • Practical, solution driven ideas will be favored.
  • Factors for consideration include; science, economics, research team, and time frame.
  • Prader-Willi Syndrome Association (USA) [PWSA (USA)] has committed a total of $100,000 from its Research fund. The funding will be made available in segments over 1-2 years.
  • Projects are particularly welcome that cut across disorders and disciplines, and have future potential to benefit the treatment of hyperphagia in uncommon disorders and overeating in obesity amongst the general population.

Grant Administration

  • PWSA (USA) is the granting organization, controls the process, and has ultimate award authority.
  • The review and approval process will generally follow the typical PWSA (USA) process with the exception that the timeline for review and granting are as outlined below and additional experts may be participating in the review process.

The timeframe is:

  • Hyperphagia Conference June 4, 5
  • Letter of Intent (LOI) submission August 1
  • Response to LOI by PWSA (USA) September 1
  • Full PWSA (USA) 5 page grant submission November 1
  • Grant decision by PWSA (USA) December 1

Letter of Intent

To begin the grant process, researchers seeking funds are asked to submit a 1-3 page LOI summarizing the proposed project. Based on the LOI, PWSA (USA) will prioritize the projects and invite full grant applications from those most meritorious.

LOI should contain a summary of at least the following items:

  • Principal Investigators contact information and email addresses
  • Brief overview of proposed research design
  • Project goals and intent
  • Expected significance of the project for the PWS and/or hyperphagia community
  • Primary investigators (please attach NIH style biosketch no more than 3-4 pages)
  • Investigators experience with PWS and/or obesity related disorders
  • Timing of the project
  • Estimated cost

PLEASE SUBMIT AN ELECTRONIC COPY OF THE DOCUMENTS ABOVE TO:

Janalee Heinemann, MSW
PWSA (USA) Director of Research & Medical Affairs
Email: jheinemann@pwsausa.org
(T): 800-926-4797
(F): 941-312-0142

Jim Kane, PWSA (USA) Research Advocacy Chairperson
Email: jgkane@msn.com 

Dr. Jamie Bassel, PWSA (USA) Research Committee Co-Chair
Email: drjbassel@hotmail.com 

For your own records of your LOI submittal, please documented that the LOI has been received by all three parties. We thank you for your participation in our conference and interest in further research on hyperphagia.

    edited: 08/05/2009